• Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research 

      Goisauf, Melanie; Martin, Gillian; Bentzen, Heidi Beate; Ljøsne, Isabelle Sylvie Budin; Ursin, Lars Øystein; Durnová, Anna; Leitsalu, Liis; Smith, Katharine; Casati, Sara; Lavitrano, Marialuisa; Mascalzoni, Deborah; Boeckhout, Martin; Mayrhofer, Michaela Th. (Journal article; Tidsskriftartikkel; Peer reviewed, 2019-09-18)
      Biobanks have evolved, and their governance procedures have undergone important transformations. Our paper examines this issue by focusing on the perspective of the professionals working in management or scientific roles in research-based biobanks, who have an important impact on shaping these transformations. In particular, it highlights that recent advances in molecular medicine and genomic research ...
    • Minimally Invasive Glaucoma Surgery (MIGS) for individuals with glaucoma. A health technology assessment 

      Lund, Ulrikke Højslev; Bidonde, Julia; Kornør, Hege; Reinar, Liv Merete Brynildsen; Kvist, Beate Charlotte Fagerlund; Nguyen, Lien; Ursin, Lars Øystein; Lerner, Martin Robert; Robberstad, Bjarne (Research report; Forskningsrapport, 2021-04-22)
      Key messages: This health technology assessment (HTA) summarises and supplements a 2019 Canadian HTA on the effectiveness and safety of micro-invasive glaucoma surgery (MIGS) versus other treatment options. Further, it contains cost-effectiveness analysis based on the Canadian HTA, in addition to patient partners’ considerations, organizational and ethical considerations relevant to discussions ...
    • Postponed Withholding: Balanced Decision-Making at the Margins of Viability 

      Syltern, Janicke; Ursin, Lars Øystein; Solberg, Berge; Støen, Ragnhild (Journal article; Tidsskriftartikkel; Peer reviewed, 2021-05-17)
      Advances in neonatology have led to improved survival for periviable infants. Immaturity still carries a high risk of short- and long-term harms, and uncertainty turns provision of life support into an ethical dilemma. Shared decision-making with parents has gained ground. However, the need to start immediate life support and the ensuing difficulty of withdrawing treatment stands in tension with the ...